Connect with our local chapter:
Marlborough, Connecticut (September 11, 2019)- The Connecticut Chapter of the Huntington’s Disease Society of America (HDSA) is excited to announce an upcoming fundraising event called Music on the Vine at the Chateau Le Gari winery in Marlborough, Connecticut on Sunday, September 29, 2019 from 2:30 PM to 7:00 PM.

David Lutkin, starring in Woody Sez-The Life and Music of Woody Guthrie at Ivoryton Playhouse, will be the special musical guest performer. Pete Mezzetti of The Pete Mezzetti Show on the Valley Shore Community Television will be the emcee.

Join community members in a fun, family-friendly event that includes Brick and Basil Pizza, Mammas Ice Cream Truck, raffle/auction items, live music, and children’s activities. Wine may be purchased by the glass. All proceeds go towards HDSA’s mission to improve the lives of those with Huntington’s disease and their families. All ticket purchases are 100% tax deductible.

We thank Gary and Caroline Crump of Chateau Le Gari, Careone, AV Solutions of South Windsor, Terri Ellis, DonorView and Hartford HealthCare Chase Family Movement Disorders Center for their sponsorship of the event. We also thank the musical artists who are donating their special talents and time; South of Hebron, Carlton Burns, Sequel and Rock Bottom.

For more information about the event, please contact HDSA’s Connecticut Chapter President Sue McGann (860-267-0288, cthdsa@gmail.com) and visit here

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Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Each child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of Huntington’s disease are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.HDSA.org or call 1(800)345-HDSA.

FOR IMMEDIATE RELEASE

Contact: Susan McGann
Email: cthdsa@gmail.com
​Phone: 860-267-0288