Who We Are

Welcome to the Huntington's Disease Society of America's Connecticut Chapter.

Our Mission

To improve the lives of everyone impacted by Huntington's disease by providing support, driving advocacy, and accelerating research.

Our Vision

A world where Huntington’s disease is treatable and care is accessible for all.

What is HD?

Huntington’s disease (HD) is an inherited neurological disease that causes progressive breakdown of movement, thinking, and behavior. Symptoms worsen over time and can affect a person’s ability to work, communicate, and care for themselves. Today, approximately 41,000 Americans are living with symptoms, and more than 200,000 are at risk of developing the disease. Each child of a parent with HD has a 50 percent chance of inheriting the gene. There is currently no cure, but research is accelerating the development of better treatments and improved care.

About HDSA

The Huntington’s Disease Society of America (HDSA) is the leading national nonprofit dedicated to improving the lives of everyone impacted by Huntington’s disease. Through community events, education, advocacy, specialized care, and research advancement, HDSA connects individuals and families to trusted resources and works to ensure no one faces Huntington’s disease alone.

Across the United States, HDSA currently supports:

• 50+ volunteer-led chapters and affiliates

• Huntington’s disease research

• HDSA Centers of Excellence

• Social workers

• Support groups

• Education programs

• Youth and young adult programs

• Advocacy efforts

• Extensive community education and awareness

through Team Hope walks and more than 300

special events annually

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