Who We Are

Welcome to the Huntington's Disease Society of America's Connecticut Chapter. We are a part of HDSA's Northeast Region

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​


HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page


Contact Us

Mailing Address
Huntington’s Disease Society of America- Connecticut Chapter
101 Deer Run Drive
Colchester, CT 06415

HDSA Regional Development Officers
Melinda Jensen
p. (212)-242-1968 ext: 236
e. mjensen@hdsa.org

Virginia Goolkasian
p. (978) 905-5588
e. vgoolkasian@hdsa.org