Takes place Saturday, September 24th at Chateau Le Gari
Marlborough, Connecticut (September 15, 2022) –
The Connecticut Chapter of the Huntington’s Disease Society of America (HDSA) will host the Music On The Vine on Saturday, September 24th at 2:30 PM – 7:00 PM (ET) at Chateau Le Gari. Children under 12-years-old will have free entry. General admission will be $20 as all proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.
“We are excited to have live music, food trucks, and children's activities for a fun, safe family-friendly event to raise awareness and funds to improve the lives of everyone affected by HD,” said Susan McGann, HDSA’s Connecticut Chapter. “We thank our sponsors: Gold Sponsor, Beacon Prescriptions of Bristol; Silver Sponsors, Hartford Healthcare Chase Family Movement Disorder Center, UCONN Health HD Program and Fresh River Healthcare and Bronze Sponsors, Care-one and Vanasse Hangen Brustlin, Inc. as well as the musicians who are donating their time and talents.”
For more information about the event, please contact Susan McGann (firstname.lastname@example.org
, 860-267-0288). Online registration and donation can be found at connecticut.hdsa.org/musiconthevine
This event is regionally sponsored by UniQure.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA.
FOR IMMEDIATE RELEASE
(212) 242-1968 ext. 204