Takes place Saturday, September 18th at Chateau Le Gari
Marlborough, Connecticut (August 31, 2021) – The Connecticut Chapter of the Huntington’s Disease Society of America (HDSA) has announced the return of Music On The Vine on Saturday, September 18th at 2:30 PM – 7:00 PM (ET) at Chateau Le Gari. Children under 12-years-old will have free entry. General admission will be $20 as all proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.
“For everyone it is a feeling of empowerment as they see an army of people coming together to make a difference,” said Virginia Goolkasian, HDSA’s Northeast Regional Development Officer.
The award-winning event from HDSA Convention will include fun live music, food, and wine. The One Love Rolling Cookshed will have gourmet smashed burgers and gourmet fries with vegan, vegetarian, and GF alternatives for sale. Rita’s Ice of Farmington will have Italian ices, frozen custard and ice cream for sale. Live music will be performed by Peter Lehndorff and Susan Hill-original/folk/and Tin Pan Alley songs; Sequel-Jazz Quartet and Bruce and Caelyn-70’s and 80’s. There will be children’s activities outside.
For more information about the event, please contact Susan McGann (cthdsa@gmail.com, 860-267-0288). Online registration and donation can be found at connecticut.hdsa.org/musiconthevine
Due to an abundance of caution, the event will follow HDSA’s Face To Face Event Guidelines. This event will be sponsored by Gold-Teva Pharmaceutical; Bronze-Care-One, Chase Family Movement Disorder Center, Vanasse Hangen Brustlin.
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Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA.
FOR IMMEDIATE RELEASE
Matthew Santamaria
Communications Coordinator
(212) 242-1968 ext. 204
msantamaria@hdsa.org